My tics are calm today so mom is going to let me type myself rather than tell her what to type for me! Yay! So, guess what happened today my webmaster Mr.Paul put our own twitter on the website!!! I was blewn far away when I found out how much people were on my website today! alot I can tell you that!! And I'll tell yall what happened at school today. At the waterfountain a boy saw my wristband and asked me what it was. I said it was a wristband for my site about bullying, I said it was $10 and he said i'm not gonna pay $10 for that bracelet. He was in 4th grade!! He is older than me and he dont even realize that you give a donation and get a wristband as a thank you. You don't buy a wristband for $10. But he could not understand that. He does not understand my goal or jaylens challenge, but I bet he will understand later. Well mom is rushing me to get a bath and in bed so I better go for now. Thank you everyone for supporting me and for all my new twitter friends. "Tic" ya later! J-MacRead more
I had a great day at school. Mrs. Mobley gave me about 25 High School Musical stickers and I gave half of them to my little sister. We like HSM. Ok so today was funny because I told my mom I acted like a mature adult and she just laughed at me. She laughs at my speech all the time. BAM! After school, we go to after care until she gets off work and picks us up. Well when she picked us up today, our car smelled really really bad. Most of the time it smells like my mama's perfume or leather. Well today it just was stinky to me. I have a strong sense of smell..guess that comes with all my other stuff. Sometimes people think things smell good and to me it will really stink - bad! Mommy couldn't smell what I was smelling. Ok, so mommy said: well I had to run by the dentist office and get my teeth cleaned today after work, maybe you are smelling the flouride the dentist put on my teeth, come smell my teeth. I thought and said out loud: Are you kidding me? I'm not smelling your teeth, so mom gets my little sister Nina to do it (she will do anything with mom). So Nina smelled Mom's teeth! Nina said: mmmmm, it smells good like the stuff the dentist uses and doesn't stink. So Mom says : Jaylen come smell and see if that is what you are smelling? Hello, I am not smelling my mama's teeth! So she said I was acting silly and should smell to see if that is what I'm smelling. BAM! I told her 'no, i'm acting like a mature adult'. Mature adults don't go around smelling people's teeth. My mama just started laughing so hard. And then we all started laughing. And once we start laughing really hard, it's hard to stop. So todays note is: Don't smell anyone's teeth. MAture adults don't do that. (mom still thinks its funny because she says I am not no where near an adult). Have to go to bed. Yay! KRIS WON AMERICAN IDOL!!! I AM SO HAPPY! BAM! "Tic" ya later! J-MacRead more
Guess what happened today? My mom gave my whole class my new wristbands and they love them! Last night we had my awards and I got an award for A-B Honor Roll, Friendship Award, Singing Excellence Award, and Diligence Award! I was so excited! Oh also our whole page should be up and going. Mr. Paul is the smartest webmaster ever! He's my friend and I can't wait for him to come visit me! I want to give a shout out to my friend Rachel and her family, the Plylers for their support of my cause. You rock Jim. Thank you a lot. Okay going to watch American Idol and hope Kris wins! "Tic" ya later! J-Mac C'mon people, change the world!Read more
Hello I am Jaylen as you can see. I am excited today because when my mom picked me up from school a few minutes ago, she showed me my new yellow and blue wristbands. I am also excited because Mr. Paul (my webmaster who is helping me) is really close to completing my website. Very soon, we will have our own place to write back and forth like a forum, like our own Twitter! It's gonna be super cool! In a few minutes I'm off to my awards ceremony at my school to get awards and I can't wait. So I must hurry and go and I will talk to you very soon. "Tic" ya later! J-MacRead more
Tourette Syndrome is NOT contagious. You can not catch it from me. You have to either be born with it, sustain a brain injury, or sometimes tics can present themselves as a side effect to medications; however, this may not warrant a Tourette diagnosis. Boys are 75% more likely to have Tourette Syndrome than girls. Tourette seems to be less severe in girls. 1 child per 1,000 in the United States have Tourette's Disorder. 1 in 100,000 suffers from full blown Complex Tourette Syndrome with both motor and verbal tics like me. There is no cure. It is named after the French Neurologist Georges Albert Edouard Brutus Gilles de la Tourette, who discovered it in 1885. Only 10% of people with Tourette Syndrome who display vocal tics will have Coprolalia (using profanity). Seventy percent of children with Tourette Syndrome will improve by the time they reach adulthood. Most tics will not be observed into adulthood. (But the bullying will stay with them forever). We are not mentally retarded. On the contrary, it is mostly the opposite. Most of us with TS and Aspergers have a very high level of intelligence. Our condition worsens with anxiety, stress, over stimulation, and too much sensory. This is why we twitch and jerk even more when you stare at us and mock us. You are making us visably nervous and it is not funny. It may take our bodies weeks to calm down. Tics come in waves. Motor and Vocal tics wax and wane in severity and frequency. All tics happen though everyday with no break. When we speak with a difference in frequency, a good example would be: rolling your eyes and jerking your neck 80 times a day during a waning period vs. 500 times a day during a waxing period. Hard to believe, but true. Our bodies get really sore.Read more